To all who replied,
First thank you all so much for your encouragement. I've been very lucky to find an amazing doctor (actually with the first name of Siddhartha!) after spending time in a general psych unit where they told me honestly they knew OF what I had, but had no idea what to do for me - they upped my Klonopin because it is also an anticonvulsant. My new doctor was familiar with them and was a great guide. He also encouraged me to see Dr. Curt LaFrance, who is currently the only researcher of treatment plans for nonepileptic seizures. My count has steadily decreased from the original 15+ a day, to many weeks of 12-14, and recently down to 3-5 a week. I'm doing much better, I'm a part of a 12-week clinical trial for treatment methods (the CBT leg of the trial actually).
I mainly wanted to post to see if others shared having had some seizures. Mine were undeniably large and violent and, well as I've learned, non-epileptic seizures can present themselves in all the various ways as epileptic, from small shakes to grand mal-like.
It's interesting to me now to get the replies, and see that truly this is an under-understood phenomena. It actually is related to stress, but in cases of PTSD the idea is that it falls in the category of a conversion disorder: a psychological distress is presenting itself through neurological symptoms. Well, that is the case even without PTSD, but with PTSD and especially childhood sexual abuse, the pathways and wire-crossings can be...
Well, its a journey. It's a powerful one and phenomenal addition that has really both sped up and in some ways slowed down my recovery.
I suppose some of my posting is to advocate for information about PNES-es and their possible presence. Certainly to offer any validation to someone with sort of "unexplained" symptoms or if they are labeled as "anxiety" or "panic" based, as mine initially were.
The doctor I'm doing the trial with is hoping to write the first ever manual on them which will help. They can come for people in car accidents, later in life with seemingly no trigger, for people with abuse histories, or often without.
Thanks so much for your responses and I'm happy to be back on the forum, and am trying to attend the retreat in New York for one day this weekend. It would be great to become more involved in the community of survivors.