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#328383 - 04/14/10 03:25 PM Re: Started the anti retroviral drugs [Re: philistine]
duncanUK Offline
Member
MaleSurvivor

Registered: 12/24/06
Posts: 632
Hello Mike,


sorry for the late reply. I am now three months into taking the drugs and have not quited yet. I am still unwell, bad chest pains and things like that. A sore throat that comes and goes.

Duncan

_________________________
you dont see me. i am not really here. Its my fault.. all of it. I am to blame and no one else.

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#328540 - 04/15/10 08:10 PM Re: Started the anti retroviral drugs [Re: duncanUK]
philistine Offline
Member
MaleSurvivor

Registered: 04/27/09
Posts: 211
Loc: Oregon
Thanks for letting me know. I really do think of you, and continue to wish that you be well.

_________________________
Mike

"No price is too high to pay for the privilege of owning yourself" - Nietzsche

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#328658 - 04/17/10 02:17 AM Re: Started the anti retroviral drugs [Re: philistine]
TheLordSavedMe Offline


Registered: 04/17/10
Posts: 1
Loc: Midwest
Duncan,

I just found this website tonight, and actually seeing your posts regarding the HIV drugs is what motivated me to go ahead and register (otherwise I probably would have stayed anonymous). I'm really glad you are taking the drugs again. I stopped taking the drugs for a few years once and I got KS cancer (oportunistic infection), that was a wake up call for me. I have had 4 HIV specialist over the years, I've had this disease for a long time.

Last year I got a new doctor who is amazing, and that is making a lot of difference. Research the medicines yourself, make sure you understand the side-effects and treat them. That's a big part to dealing with all of this.

My current doctor has had amazing success with treating all of the side effects, like the unusual fat deposits and sunken faces. He does that with nutrional supplements. I've had HIV for a long time, and no one can tell by looking at me.

I also take 2 anti-depressants (because one of my medications casuses depression. And I did a lot of research regarding HIV fatigue, because it was so hard for me to get through a day. I wound up having my doctor put me on the drug Nuvigil. Nuvigil is for narcolepsy, but I found govt trials where they were using it to combat HIV and Cancer fatigue. Basically it's a speed type drug without all of the side-effects and adictive properties of amphetamine drugs.

I'm also very fortunate because the doctor I go to now is a research doctor and is involved in a lot of research for HIV. Last year he was already testing for a side effect called CAN (cardiac autonomic nueropothay) before it was even released by the FDA. This is a current issue that is just starting to come out regarding Protease Inhibitors. The FDA report that came out in Nov/09 states that it comes from a combination of two of those type of drugs. However the actual details are still in research, and I only take one of the two drugs in the FDA report and I have it. Basically if you take a Protease Inhibitor, you needed to be tested for CAN. CAN = damaged nerves that control your heartbeat and can lead to a sudden fatal heart attack. However by taking a simple heart pill for the rest of your life you can counteract that.

Duncan I want to go on tell you that my life is getting back to normal, and yours can to. The first couple of years after starting back on the meds were not fun. And it was a lot of trial and error trying to treat the side-effects. And I didn't tell you about all of them. There are still quite a few that I either have dealt with or do deal with.

As you get stronger, things get better. Stick in there!!!

With Love & Prayers my brother,

Rex


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#328950 - 04/19/10 04:16 PM Re: Started the anti retroviral drugs [Re: TheLordSavedMe]
duncanUK Offline
Member
MaleSurvivor

Registered: 12/24/06
Posts: 632
Rex,
I am pleased that this post motivated you to register. welcome. sorry to hear whay you have been or going through. I am controlled by the darkerside of my personality.

I battle everyday to maintain control, but is so hard to resist the call to just give up and stop the fighting within myself. I have stopped and started the drugs as a result of the on going conflict and only go back when i become to sick to carry on.

I have resisted that call to give up now for three months... a record for me. I am on Truvada and Viramune.

I will try and keep taking the drugs, but i can make no promises even to myself. I have failed so many times

_________________________
you dont see me. i am not really here. Its my fault.. all of it. I am to blame and no one else.

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#329066 - 04/20/10 02:50 PM Re: Started the anti retroviral drugs [Re: duncanUK]
Davesc Offline


Registered: 09/24/08
Posts: 67
Loc: NJ
HI D. The only thing you can do is try each day. You have friends here and elsewhere who want to see you succeed. If you feel like quitting, e-mail or call. We are in your corner. Bless ya D

_________________________
Davesc
_______________________________________
Thankful Wor Kirkridge Alumni Oct 2008

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#329221 - 04/21/10 04:48 PM Re: Started the anti retroviral drugs [Re: Davesc]
philistine Offline
Member
MaleSurvivor

Registered: 04/27/09
Posts: 211
Loc: Oregon
You are not failing, you may not be succeeding at your goal, but that is not failure. You are making yourself take an evil cocktail, necessary but it is not pleasant. I ask that you keep trying, and stop talking about this as if failure is not taking a pill. Failure is giving up.

_________________________
Mike

"No price is too high to pay for the privilege of owning yourself" - Nietzsche

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#331481 - 05/21/10 04:37 PM Re: Started the anti retroviral drugs [Re: philistine]
duncanUK Offline
Member
MaleSurvivor

Registered: 12/24/06
Posts: 632
I am coming into the fourth month on these drugs... I will continue to take them for as long as my other self allows me too.

I have so much hate and anger within me, i cannot let it go. Its dragging me slowly down with it. The battle goes on.

I do know it will not be the virus that will get the better of me.. its will be those drugs.

_________________________
you dont see me. i am not really here. Its my fault.. all of it. I am to blame and no one else.

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#331498 - 05/21/10 08:03 PM Re: Started the anti retroviral drugs [Re: duncanUK]
Geeders Offline
Member
MaleSurvivor

Registered: 09/03/08
Posts: 1901
Loc: Peterborough, Ontario, Canada
Duncan,

I'm glad that you are at least giving them a chance. Hang in there, and come here as often as you need to vent. We're with you, and for you.

Jim

_________________________
My name is Jim
WoR Mysthaven 2008, Level 2 WoR Alta 2009, Kirkridge 2010, 2011, Oprah 200 men

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#331875 - 05/24/10 12:03 AM Re: Started the anti retroviral drugs [Re: Geeders]
philistine Offline
Member
MaleSurvivor

Registered: 04/27/09
Posts: 211
Loc: Oregon
I agree, if you need to talk I will be around. Hang in there, please.

_________________________
Mike

"No price is too high to pay for the privilege of owning yourself" - Nietzsche

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#352173 - 01/28/11 01:48 AM Re: Started the anti retroviral drugs [Re: philistine]
Daniel_forgotten Offline


Registered: 02/07/09
Posts: 479
u amaze me Duncan. please, dont stop fighting.


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