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#159180 - 05/31/07 12:08 AM Migraines
grover Offline
Member
MaleSurvivor

Registered: 05/28/07
Posts: 50
Loc: Tennessee
Just curious, how many have them?

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#159206 - 05/31/07 07:35 AM Re: Migraines [Re: grover]
Trish4850 Offline
BoD Liaison Emeritus
MaleSurvivor<

Registered: 10/15/05
Posts: 3280
Loc: New Jersey
Hi Grover,

I'm not a survivor, but I suffer from terrible migraine. They're usually triggered by food or something in the environment, but my doc and I haven't been able to pinpoint what triggers mine. I've had MRI's and it appears that I have something called White Matter Migraine Disease, which is way better than the MS they first suspected. I take Imetrex pills when they start during the day which will usually minimize a real "want to blow your head off" pain and I have shots to take when they strike in the night and I wake up to full on pain.

I feel your pain big time here.

ROCK ON........Trish

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If you fall down 10 times, Stand up 11.

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#159324 - 06/01/07 10:02 AM Re: Migraines [Re: Trish4850]
Grunty1967b Offline
Member
MaleSurvivor

Registered: 07/28/05
Posts: 823
Loc: Australia
Hi Grover,

Sad to say, I get them and way too often. They normally strike every 3-4 weeks and last for 3 days on average. As Trish said, it feels like pain relief would come easy in the form of a gun to the side of the head.

;\)

Iím [fortunate] I donít get vision issues or nausea (except when the pain is excruciatingly more worse than really, really bad). My doctors have worked through all standard, potential causes and triggers but sadly to no real effect. I had a catscan in case it was a brain tumour. Nothing there. Brain tumour that is Ė there was a brain found in there amazingly! 

Iíve been on the 4 different types of preventative medication there are. The first 2 did nothing, the 3rd one caused me to go into major depression and the 4th and last one worked very well but that then caused me to have artery spasms and cramps. Iím off that now and back to my regular 3 weekly migraines.

My neurologist has said for many people they are hereditary. My mom also gets them so I think heís right on that one. He also said in those hereditary cases the frequency and intensity tend to diminish with age. My mom attests to that, but sheís over 60 now. Guess Iíll have to wait at least another 20 years before a let up. Good thing I donít own a gun ;\)

Sorry to not be able to add any positive news, but then again, perhaps you havenít investigated preventative medication?

Take care.


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#159340 - 06/01/07 10:58 AM Re: Migraines [Re: Grunty1967b]
pain4ever Offline


Registered: 04/05/01
Posts: 1032
Grover,

I am thirty and have been suffering from them since the age of 10. So 20 years. Have been to The Mayo Clinic, Diamond Head Pain Clinic, U of Michigan, Michigan Hain Pain and Nuerologiocal Institute....no fix. No has a clue why.


They are disabling...I was off from work for 3 months once.

I hae tried every preventative medication....none work. I am running out of pain meds that work to numb the pain. I now just take Seroquel to knock myself out so I can sleep it off.

Mine start out with visual problems...stars...left side goes numb...then I get severve head pain with light and sound sensitivity.

_________________________
Peace and Tranquility all depends on your frame of reference.

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#159425 - 06/01/07 10:16 PM Re: Migraines [Re: pain4ever]
healingpartner Offline
Guest

Registered: 04/04/07
Posts: 407
I am not a survivor either, but get them. I was diagnosed at age 8. Mine are only broken after throwing up multiple times...I almost go into shock, in and out of consiousness, clammy, pulse and bp go through the floor, auditory issues, etc.

I don't take anything as I only get them every few months and while they are intense, only last a few hours. to me the side effects arent' worth the meds.

The best thing for me is lying on a cold tile floor.


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#159432 - 06/01/07 10:41 PM Re: Migraines [Re: healingpartner]
EGL Offline
Moderator Emeritus
MaleSurvivor
Registered: 06/19/04
Posts: 7821
My wife gets similar symptoms to Lorie's with her migraines, so I feel for all of you who get them. I've had to take my wife to the ER several times with them. She takes Topamax which seems to have helped, since she hasn't had a migraine since being on it for about a year or so.

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Eddie

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#159457 - 06/02/07 10:13 AM Re: Migraines [Re: EGL]
Trish4850 Offline
BoD Liaison Emeritus
MaleSurvivor<

Registered: 10/15/05
Posts: 3280
Loc: New Jersey
HP,

If you only get them every few months, a preventative probably wouldn't work well for you, but something like Imitrex might. I haven't felt any side effects from it and while it may not make the migraine completely go away, it will minimize the throwing up, pulse and bp issues; at least it does for me. There are alot of migraine meds out there now and it's hit or miss as to what will work for you. I had Maxalt for a while too, which also worked. I don't get the visual auras and rarely vomit, unless it's a real doozy, that's why the shots are good 'cause if you do get sick, the pill won't come up. Even once is too much to suffer from a migraine as they make you completely unable to function.

My mother suffered from cluster migraine at a time when the only relief she could get was in the hospital on morphine. Thankfully I don't suffer with that! I've never witnessed an individual go through so much pain on a prolonged basis. For as bad as mine are when they strike, I thank G_d I don't have to deal with that.

ROCK ON..........Trish

_________________________
If you fall down 10 times, Stand up 11.

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#159906 - 06/04/07 09:33 PM Re: Migraines [Re: Trish4850]
Nichxx86 Offline
New Here

Registered: 06/04/07
Posts: 5
Loc: Virginia
I take Excedrin Migraine for my migraines, works great. After 20 minuites my migrain is gone!



Edited by Nichxx86 (06/04/07 09:34 PM)

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#159910 - 06/04/07 09:39 PM Re: Migraines [Re: Nichxx86]
Trish4850 Offline
BoD Liaison Emeritus
MaleSurvivor<

Registered: 10/15/05
Posts: 3280
Loc: New Jersey
Nich,

You're a lucky man. For me, taking excedrin is like popping M&Ms, but no sugar high

Trish

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If you fall down 10 times, Stand up 11.

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#159980 - 06/05/07 09:04 AM Re: Migraines [Re: Trish4850]
pain4ever Offline


Registered: 04/05/01
Posts: 1032
LOL...I used to literally take 4 dozen Ibuprofen a day when I was trying to take the edge off mine. The doc threw a fit...he said your gonna kill your liver, I told him that he needs to figure these out! So he gave me Stadol Nasal Spray (Narcotic pain killer) and 6 months later my system is used to it and it no longer works.

The hospital is where I would end up...Dilauded and Visteral....sleep!

They just put me on Topamax to try to curb them.

Hate waking up with them...don't even open my eyes and tears run down my face.



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Peace and Tranquility all depends on your frame of reference.

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#160047 - 06/05/07 04:59 PM Re: Migraines [Re: pain4ever]
indygal Offline
Member

Registered: 06/22/06
Posts: 439
oh jees - am sorry to hear all of you suffering like this - i, too, once suffered immeasurably from migraines, abused the otc drugs such as tylenol and ibuprofin something fierce. then a friend recommended a migraine specialist in nyc, he's written a couple of books, dr. mauskop, he's excellent.

he got me off the otc stuff, which as it turns out, can cause 'rebound' headaches and then trigger the migraines, and can even make them worse - as in - can anything stop it? i also took morphine in the beginning because maybe that's all they had back then? i don't know it wasn't that often so i didn't ever abuse it or anything.

they got worse as i got older due to hormonal dysfunction, then it was from abusing the otc drugs, it became a vicious cycle

dr. mauskop kept insisting i get off all caffeine as well - i did do that except for chocolate - he kept insisting that also was a problem

anyway he put me on some antiseizure drugs - it might have been topamax - this was about 1-2 years after it getting off the otc, which is how long it seemed to take to get it out of my system, i was on the that for maybe 6 months and started getting better

i tried the imitrex and all the other advanced meds but always had side effects i couldn't tolerate, fiurocet is the only one that has ever worked for me. it's a drug cocktail of phenobarbitol, tylenol and caffeine. people abuse it something terrible but it can be very effective if you are careful. is very cheap also.

then when i moved overseas i vowed to stop eating chocolate forever - not that i ever ate that much, but i did eat it from time to time, or drink it in winter.

wow - i couldn't believe the difference, after so many years, i hardly ever have a headache - i never would have believed it.

so what does it for me - no caffeine whatsoever, not green tea, nada, and that includes chocolate. too much sugar can also trigger a headache so i watch that intake also. keep my sleep patterns as regular as possible and try to avoid too much sun (also used to trigger them, as in excess heat/sun)

as for otcs, i'm still a bit sensitive but can use tylenol if i have a fever, but then have to stay away from it, the fiurocet i use maybe once or twice a month, down to a quarter of a tablet with 1 tylenol to boost it - maybe once every 2 months or so i get a full blown migraine and have to take as much as 2 tablets of fiurocet - then the caffeine sometimes kicks in and my former addiction to that causes withdrawal symptoms which includes migraines - so it's a catch 22 but worth it to be pain free the rest of the time.

so for anyone who ever mentions migraines the first thing i suggest is get a specialist; then get off the caffeine and chocolate and the otc (over the counter) meds. also watch out for other meds that have caffeine added to them - even some sodas such as barq's root beer and mountain dew - where you'd not be looking for it.

good luck
indy





Edited by indygal (06/05/07 05:02 PM)
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#160170 - 06/06/07 08:16 AM Re: Migraines [Re: indygal]
pain4ever Offline


Registered: 04/05/01
Posts: 1032
Indy,

Sorry you too have the migraine curse. Yeah, when I was at the Diamond Head Pain clinic and the Michigan Head pain and Neurological Center...I went through the OTC detox and stopped all caffene...Milk products...I mean a huge list of thing I could not ingest...I kept a food diary. The docs could never find a trigger there.

He tried Fiurocet for me...didnt work but we found one odd medication that did. I have to refill it and see if it is effective anymore, it wasnt the last couple times. It was indocin or the generic indomethacin,,,it was made for Arthritis but it seemed to work. Since I threw up so much it couldnt be in pill form...and not a shot...think about it...not fun but it worked. After my stints there I threw away 42 bottles of meds that they tried and didnt work!

Sleep I think had a huge amount to do with it. I took a new job and I dont get regular sleep anymore due to the drive. Guess wwhat...migraines got worse. I am trying to move now to get back on a regular sleep schedule.

Brian

_________________________
Peace and Tranquility all depends on your frame of reference.

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#160437 - 06/07/07 02:54 PM Re: Migraines [Re: pain4ever]
Galapogos Offline
Member
MaleSurvivor

Registered: 04/15/05
Posts: 110
Loc: usa
I started getting migranes when I was about 14. Had one about every 18 months or so for a few years. I get all the stroke-like symptoms, numbness, vision problems, slurred speech, jumbled words, nausea, light sensitivity, and a pain in my head that's beyond words. Usually they last about 12-18 hours. Had an rx for caffergot as a teen, it was supposed to derail most of the side effects, I can't say it ever worked.

My last migrane was 2 years ago this month, so I hope there isn't one in store for me soon. I should have gone to the ER or seen a doctor at the time. I've never had any kind of scan.

_________________________
Digging in the dirt
Stay with me I need support
I'm digging in the dirt
To find the places I got hurt
Open up the places I got hurt
--Peter Gabriel

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#160760 - 06/08/07 08:58 PM Re: Migraines [Re: Galapogos]
indygal Offline
Member

Registered: 06/22/06
Posts: 439
yeah, i also used to get the 'exercise-induced' headache - any slight disturbance to my metabolism and BAMM i was paying for it - i always would blame it on all the beatings on my head i endured as a child and young adult but my hormones definitely played a role

something else i forgot to mention **feverfew** is a herb you can find in the health food store - i remember dr. m suggested this to me and i tried it for a while - there's been research with it as a migraine preventive - it really makes you feel unnaturally good as in - is this legal??? but that wears off after a couple of weeks, unfortunately!! ha ha...

i took it as a capsule, they make a tea but it sucks (the taste).

magnesium supplements are also supposed to help.

there's a lot of research out there - mostly i try to eat healthy, get enough sleep (no sleep is a BIG stresser for me, headache inducer) and keep a regular schedule, i do exercise but try to not overdue it w/o adequate prep ahead of time

*also* started bp meds a little over a year ago, that's helped a lot also, seems i'm just a little hypertensive which also causes headaches.

i too had a lot of meds, mostly unused, and am glad not to have them now but i never go far w/o my migraine med no matter what.

indy

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my avatar is one of the Battle Angel characters, fighting the good fight.

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