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#159180 - 05/31/07 12:08 AM Migraines
grover Offline
Member
MaleSurvivor

Registered: 05/28/07
Posts: 50
Loc: Tennessee
Just curious, how many have them?

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Shocking revelations, we are all deeply effected.
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#159206 - 05/31/07 07:35 AM Re: Migraines [Re: grover]
Trish4850 Offline
BoD Liaison Emeritus
MaleSurvivor<

Registered: 10/15/05
Posts: 3280
Loc: New Jersey
Hi Grover,

I'm not a survivor, but I suffer from terrible migraine. They're usually triggered by food or something in the environment, but my doc and I haven't been able to pinpoint what triggers mine. I've had MRI's and it appears that I have something called White Matter Migraine Disease, which is way better than the MS they first suspected. I take Imetrex pills when they start during the day which will usually minimize a real "want to blow your head off" pain and I have shots to take when they strike in the night and I wake up to full on pain.

I feel your pain big time here.

ROCK ON........Trish

_________________________
If you fall down 10 times, Stand up 11.

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#159324 - 06/01/07 10:02 AM Re: Migraines [Re: Trish4850]
Grunty1967b Offline
Member
MaleSurvivor

Registered: 07/28/05
Posts: 823
Loc: Australia
Hi Grover,

Sad to say, I get them and way too often. They normally strike every 3-4 weeks and last for 3 days on average. As Trish said, it feels like pain relief would come easy in the form of a gun to the side of the head.

;\)

Iím [fortunate] I donít get vision issues or nausea (except when the pain is excruciatingly more worse than really, really bad). My doctors have worked through all standard, potential causes and triggers but sadly to no real effect. I had a catscan in case it was a brain tumour. Nothing there. Brain tumour that is Ė there was a brain found in there amazingly! 

Iíve been on the 4 different types of preventative medication there are. The first 2 did nothing, the 3rd one caused me to go into major depression and the 4th and last one worked very well but that then caused me to have artery spasms and cramps. Iím off that now and back to my regular 3 weekly migraines.

My neurologist has said for many people they are hereditary. My mom also gets them so I think heís right on that one. He also said in those hereditary cases the frequency and intensity tend to diminish with age. My mom attests to that, but sheís over 60 now. Guess Iíll have to wait at least another 20 years before a let up. Good thing I donít own a gun ;\)

Sorry to not be able to add any positive news, but then again, perhaps you havenít investigated preventative medication?

Take care.


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#159340 - 06/01/07 10:58 AM Re: Migraines [Re: Grunty1967b]
pain4ever Offline


Registered: 04/05/01
Posts: 1032
Grover,

I am thirty and have been suffering from them since the age of 10. So 20 years. Have been to The Mayo Clinic, Diamond Head Pain Clinic, U of Michigan, Michigan Hain Pain and Nuerologiocal Institute....no fix. No has a clue why.


They are disabling...I was off from work for 3 months once.

I hae tried every preventative medication....none work. I am running out of pain meds that work to numb the pain. I now just take Seroquel to knock myself out so I can sleep it off.

Mine start out with visual problems...stars...left side goes numb...then I get severve head pain with light and sound sensitivity.

_________________________
Peace and Tranquility all depends on your frame of reference.

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#159425 - 06/01/07 10:16 PM Re: Migraines [Re: pain4ever]
healingpartner Offline
Guest

Registered: 04/04/07
Posts: 407
I am not a survivor either, but get them. I was diagnosed at age 8. Mine are only broken after throwing up multiple times...I almost go into shock, in and out of consiousness, clammy, pulse and bp go through the floor, auditory issues, etc.

I don't take anything as I only get them every few months and while they are intense, only last a few hours. to me the side effects arent' worth the meds.

The best thing for me is lying on a cold tile floor.


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#159432 - 06/01/07 10:41 PM Re: Migraines [Re: healingpartner]
EGL Offline
Moderator Emeritus
MaleSurvivor
Registered: 06/19/04
Posts: 7819
My wife gets similar symptoms to Lorie's with her migraines, so I feel for all of you who get them. I've had to take my wife to the ER several times with them. She takes Topamax which seems to have helped, since she hasn't had a migraine since being on it for about a year or so.

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#159457 - 06/02/07 10:13 AM Re: Migraines [Re: EGL]
Trish4850 Offline
BoD Liaison Emeritus
MaleSurvivor<

Registered: 10/15/05
Posts: 3280
Loc: New Jersey
HP,

If you only get them every few months, a preventative probably wouldn't work well for you, but something like Imitrex might. I haven't felt any side effects from it and while it may not make the migraine completely go away, it will minimize the throwing up, pulse and bp issues; at least it does for me. There are alot of migraine meds out there now and it's hit or miss as to what will work for you. I had Maxalt for a while too, which also worked. I don't get the visual auras and rarely vomit, unless it's a real doozy, that's why the shots are good 'cause if you do get sick, the pill won't come up. Even once is too much to suffer from a migraine as they make you completely unable to function.

My mother suffered from cluster migraine at a time when the only relief she could get was in the hospital on morphine. Thankfully I don't suffer with that! I've never witnessed an individual go through so much pain on a prolonged basis. For as bad as mine are when they strike, I thank G_d I don't have to deal with that.

ROCK ON..........Trish

_________________________
If you fall down 10 times, Stand up 11.

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#159906 - 06/04/07 09:33 PM Re: Migraines [Re: Trish4850]
Nichxx86 Offline
New Here

Registered: 06/04/07
Posts: 5
Loc: Virginia
I take Excedrin Migraine for my migraines, works great. After 20 minuites my migrain is gone!



Edited by Nichxx86 (06/04/07 09:34 PM)

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#159910 - 06/04/07 09:39 PM Re: Migraines [Re: Nichxx86]
Trish4850 Offline
BoD Liaison Emeritus
MaleSurvivor<

Registered: 10/15/05
Posts: 3280
Loc: New Jersey
Nich,

You're a lucky man. For me, taking excedrin is like popping M&Ms, but no sugar high

Trish

_________________________
If you fall down 10 times, Stand up 11.

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#159980 - 06/05/07 09:04 AM Re: Migraines [Re: Trish4850]
pain4ever Offline


Registered: 04/05/01
Posts: 1032
LOL...I used to literally take 4 dozen Ibuprofen a day when I was trying to take the edge off mine. The doc threw a fit...he said your gonna kill your liver, I told him that he needs to figure these out! So he gave me Stadol Nasal Spray (Narcotic pain killer) and 6 months later my system is used to it and it no longer works.

The hospital is where I would end up...Dilauded and Visteral....sleep!

They just put me on Topamax to try to curb them.

Hate waking up with them...don't even open my eyes and tears run down my face.



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Peace and Tranquility all depends on your frame of reference.

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